Friday, December 25, 2009

Healh Care Reform Part 2

Have you looked at what the Senator's have passed in regards to health care now? Let see, Senator Ben Nelson, a Nebraska Democrat has put in that Nebraska will get 100% of a reimbursement for Medicaid if the bill is signed as is by the President. Then there is Senator Chris Dodd, a Connecticut Democrat who wants a $100 million dollars to go to a children's hospital. This was the bill which was to ONLY be about ways to give EVERYONE health insurance, right?

It's not that I don't want a children's hospital, I think everyone does, but..and I may sound mean, until we get federal funding for MY disease which 1 out of 5,000 people have (or about 70,000 in the USA only) nothing more should pass till we get some federal funding! We have NEVER gotten federal funding, however Chronic Myelogenous Leukemia which affects 4,600 people has received to date $22 MILLION! Or Tuberous Sclerosis which has 25,000 - 50,000 people, they have $13.5 MILLION to date.

With my disease, 600 have it in CT alone, and it has cost us $68.3 MILLION in PREVENTABLE Health care just in our state. And that does not include long term disability health costs. So, you can see why I WANT health care for EVERYONE with NOTHING attached, just start off with.

Because the Senator's have attached so much, the House will have no idea of what they are looking at now. If they don't pass it, will they have hell to pay? If they do, will they have hell to pay too? As I said before, scrap the health plan and let doctors who know what they need, like Dr. Howard Dean or Dr. John Barrasso, Republican from Wyoming.

Maybe I'm being wrong about this bill, but I don't think so.


  1. Merry Christmas back at you! Hope you had a great day!

  2. by the way what is your disease it would be helpful to for me to reply if you labeled it as I would reseach it before posting. I am pretty sure you don't understand what a disease like tuberous sclerosis is or the positive effects that can come from the federal funding could bring do some research. Besides the fact the tuberous sclerosis is a horrible horrible disease it has the potential of helping us find treatment and cures to things such as autism, even cancer. So I would like to see more money put towards this cause to possible help these preventable health care costs.

  3. All hail more TSC funding!

  4. I have HHT (Hereditary Hemorrhagic Telangiectasia) Check it out at
    When they give you the symptoms I have 90% of them, I have had a stroke at the age of 36 because of a AVM on my brain, have AVM's on my lungs, have AVM's on my spine...shall I go on. Just check it out...

  5. And I never meant to say that each one of the other diseases isn't important, just that my disease is important too.

  6. Does everything require federal funding? Are we so weak that we cannot handle anything by ourselves any more? The federal government is a case study in incompetence and waste. Why would anyone turn to them except when there is no other choice?